A mother’s plea: “Cystic Fibrosis is still a killer of young people. That’s why we need Orkambi.”

RUTH McEnaney hasn’t yet told her four-year-old son, Ciaran, all that much about the disease she takes her regular medicines for. “I say that I need these medicines to help my tummy. I need it to help my breathing. Things like that are just simple that he can understand.” He’s not yet old enough, she says, to take on the bigger information about what she is suffering from – what took her to hospital, in the last year, and made her cough up blood. For McEnaney has cystic fibrosis, a genetic condition which causes intense pain and suffering, and severely shortens the lives of those who have it. . http://www.heraldscotland.com/news/16310476.A_mother__39_s_plea___quot_Cystic_Fibrosis_is_still_a_killer_of_young_people__That__39_s_why_we_need_Orkambi__quot_/